My Myeloma update

If you have been following my last few posts, you will know that I haven’t been well with a cough/cold and last night my nose bleeding.

Well today I went to the hospital to have my bone marrow biopsy and full skeletal X-Rays. I’m not going to make any jokes in this post, just the truth.

I don’t feel up to writing all the ins and outs of how painful etc it was, but Dr Lee came to speak to me after I had further blood tests and told me that my Myeloma had relapse completely but not only relapsed but it has advanced dramatically. My blood count had decreased and my platelets have decreased to 32. I’m going to start on the Velcade probably next Wednesday. I asked if this will reduce my life expectancy and after a pause he said yes it would as we are now much further along on the expected treatment that we thought we were.

I can have Velcade and something else that I can’t remember the name of, but that would make me quite ill for the next 5 or 6 months, so have decided to go the Velcade with some steroids which I may be able to continue work with. I’m going to start off on the mix that I can work with and see if that works for me if it doesn’t then I will try the other one. I could go for a second transplant but they don’t know if that would work for me but they could try, frankly I would rather do something that has a bit more of a success rate than ‘it might or try’. It would also mean a long time again getting ready and a long time to recover that again may not work.

Overall today has not been a good day for me. Again they wanted me to stay in hospital while they gave me some antibiotics and monitored me, but after the x-rays came back and my temperature was stable he allowed me to go home with the antibiotics.

Tomorrow after some sleep and rest I may feel a bit better and try to get my positive side back, but at the moment I’m feeling down.