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Wednesday, 29 December 2010

Hospital appointment

I had my hospital appointment today, it’s been the first real update I have had since having my transplant. They weren’t able to give me a proper result of my para-protein as it will take a few days for the results to come back. However the long and short of it is that it doesn’t look like the transplant was successful. I had an appointment (by mistake) at Chester a month after my transplant and the initial result from that are that the para-protein has gone up from what it was prior to the transplant. They don’t expect it to have come down and  I wont know for definite until the 12 January when I have another appointment. I told him I felt like I was in a bit of limbo not knowing what was happening for the last three months and that’s when he said that it looks like it hasn’t worked. There are three options available that he will discuss in more detail once we have the results on the 12th, these are -  another transplant, this time using a sibling (if compatible). More Chemo therapy to see if they can control it but a different type and the going on clinical trials to try something new.

I’m not making any decisions at the moment until I know for sure that it hasn’t worked (which at the moment it looks like it hasn’t) and then find out more details and side effects etc for my options.

So it’s looking like another good year for me!!!

Saturday, 18 December 2010

High Temperature

I’ve had this sore throat and cough now for just over a week. Yesterday I felt really bad and took my temperature. It was 38.2. Now during my chemo if my temperature went above 37.5 I was to call the hospital for advice. I wasn’t really sure what the best course of action was as to who I should call. I didn’t want to bother the ward if I didn’t have to, when the oncology unit is closed I had to call ward 40 for advice. I knew I had to get my temperature down so I put the fan on blowing cold air on my and started drinking cold water. I also took some paracetamol as that brings the bodies temperature down.

I decided to go through the NHSDirect help line first. Thinking they would be able to give me the initial advice before contacting the hospital. I called the number and after about 10 minutes waiting in a queue I got through to a man that asked me some basic questions

(TIME: 22:20)

- Name
- Date of Birth
- Post Code
- First Line of address

Then the symptom:

- I have Myeloma cancer and had a stem cell transplant on the 26 August and my next appointment at the hospital isn’t until the 29 Dec.
- I’ve got a cough and sore throat and my temperature is 38.2
- I’m not sure what I should do as previously I would have contacted the hospital direct. I put a fan on and taken paracetamol as well as drinking plenty of water.
- Should I go into Accident and Emergency? (thats what I had to do last time)

There then followed a number of question:

- Can you move your chin to your chest? (Yes)
- Any difficulty breathing? (Only when I lie down but nothing major)
- Can you look at the light OK (Yes)

‘OK Sean I’m going to refer you to the nurse that is on tonight, I have your number and she will call you back. Unfortunately they are very busy tonight and it may be up to 2hrs.’

After waiting the 2hrs and still having the high temperature I was beginning to wonder if it was a bad idea to have called the NHSDirect line, but thought I would wait to see what they had to say, at least I would know what I needed to do.

…. so I waited

…. and waited

… and waited.

I was freezing cold and very tire when finally the phone rang

(TIME: 06:50 – or there about, I was too tired to properly focus on the clock)

Over 6 hours of waiting … finally I would get to find out what I needed to do.

It was a nurse who asked me some basic questions.

- Name
- Date of Birth
- Post Code
- First Line of address

Then the symptom:

this is beginning to sound familiar!

- I have Myeloma cancer and had a stem cell transplant on the 26 August and my next appointment at the hospital isn’t until the 29 Dec.
- I’ve got a cough and sore throat and my temperature is 38.2
- I’m not sure what I should do as previously I would have contacted the hospital direct. I put a fan on and taken paracetamol as well as drinking plenty of water.
- Should I go into Accident and Emergency? (thats what I had to do last time)

There then followed a number of question:

- Can you move your chin to your chest? (Yes)
- Any difficulty breathing? (Only when I lie down but nothing major)
- Can you look at the light OK (Yes)

Did the last person I spoke to actually make any notes!

‘OK Sean I think what’s best is if I refer you to a doctor’

They couldn’t put me through to the doctor so I had to call my local number and listen to the message to find out the out of hours number.

I called the number and the first thing it says is ‘for medical emergencies only call this number…’  mmmm was it a medical emergency? I’ve been waiting over 7 hours now and I wasn’t dead yet, so is it an emergency. I decided to wait for them to answer …. and wait … and wait. I was too tired to do anything else so gave up as I was just falling asleep waiting. I thought the best thing for me to do is to try and get some rest and call my local doctors again in a few hours.

I managed to get to sleep for just over an hour and though I would try the number again. Again a long wait. After much thought I decided I would give up and just ring the hospital for advice.

A lovely nurse Sue was very helpful and after taking some of my details, my hospital reference and my name, she said she would call me back. Now where have I heard that before…. but five minutes later she did call me back and said she had spoken to the doctor and if possible could I see my local GP to see if the infection was on my chest, if it was I would need to go in to hospital. She advised in future though to just call them and not to be worried about asking for advice.

Back to the emergency number again … I finally got through and didn’t have to wait as long this time. I think they had finally got some staff in as it was was early morning. An appointment was made for me at a local doctors for 11:30, not my usual one but close to where I live.

The doctor I saw was really nice and helpful and I’m glad to say it hasn’t infected my chest, but he gave me a course of tablets for the next ten days to help clear it up.

I would have liked to have said that the NHSDirect was a good facility; however after my experience I just found it to be a waste of time and a way of delaying medical care and attention. Next time I will just go straight to the hospital for advice, I have learned my lesson!

Thursday, 16 December 2010

Happy Birthday to me.

birthday cake 45_500Yesterday was my (real) birthday. I’ve managed to make it to 45 whoo hoo, maybe I shouldn’t shout too loud. My myeloma birthday is on the 26 August, that’s when I had my transplant.

Charito bought me a new lens for my camera (I love her more everyday…. is love measured by the size of your lens! don’t answer that, unless it is in a sealed envelope with £20 enclosed).

I’m not really one for celebrating birthdays at the best of times, but it was lovely to see my daughter and the Grandchildren. They came over and gave me a lovely present (which I will take some photos of when I have built it, you will have to wait to see what it is). They also bought me a cake with some candles, so it was like a real birthday party but without the jelly and ice cream (mmmmm ice cream).

I haven’t really got used to my new lens yet, but I can see the potential and the difference it makes already.

I’m suffering at the  moment as I think lots of people are with a sore throat, cough and cold. I’m managing ok at the moment although with going to work as well it is really taking it out of me and I still have to have a sleep when I get home. As I’m not on my septrin at the moment, if I think it is getting on my chest I will go straight to the docs – I don’t want to get pneumonia or pleurisy again.

I’m looking forward to the Christmas break and hopefully being relatively ok. I normally have a cold or flu or like last year recently diagnosed with Cancer so this year I’m hoping I will have an enjoyable day.

Here are a few of the shots I took yesterday. The one with the candles Amy took in point and shoot auto mode, once I taught her which button to press!




Sunday, 12 December 2010

Photo Sunday

I’ve not been too well the last few day, I have a sore throat and dry cough. Normally on a Sunday I have been dropping Charito off at work and then spending a few hours going around Chester taking some photos. Today though I decided I was aching too much and didn’t feel like walking around in the cold, coughing and sneezing so made my way home.

On the way home though I thought I would take a detour down a road I don’t normally go to see what was there. It was very misty and the landscape looked amazing with the sun shining through the mist. So I decided  I would stop off down the lane to take some shots and when I got cold get back in the car again for a warm. I did this a few times and I will definitely do it again. There were pheasants, eagles, horses, sheep, horse and cart; all sorts of things. I didn’t get a chance to take pictures of them all, but now I know that is the type of thing to expect, I will be better prepared.

Here are some of the shots I took, both down the lane and opposite my house.

Red Berries

 Old Tree


The correct Ewe

depth of (corn) field two Depth of (corn) Field

Friday, 10 December 2010

Stalking is an art

I met up with my younger brother Nick today. He asked if I wanted to meet up for a coffee, something that I would never refuse if I can help it. So we went into Chester and he bought me a coffee and granola bar. Afterwards I went took a slow stroll over to Chester castle to take some pictures of the so called Chester Eye (looks remarkably like an elaborate big wheel to me).

chester eye

 centre of chester eye

After taking a few shots I walked back to the car. On the way I saw Nick walking down the street; he didn’t see me, so I though, as I have the camera out still I would take some candid shots of him without him knowing. I quickly took a few snaps that didn’t come out as I didn’t have time to set the camera onto the correct settings. So though I would follow him. Now keep in mind that he is taller than me and walks at a pace that I would have called running even when I was well. There was just no way I was going to catch up with him. I lost him as he sped off up the road but with a bit of deduction I worked out that there wasn’t many places he was likely to have gone and decided that Tesco in Frodsham street was my best bet.  I wondered around the shop, camera around my neck in the hope that I would be able to sneak up on him and take some pictures without him knowing. I gave up in the end and decided he must have gone somewhere else so was just about to walk out of the shop when I gave one final glance at the tills again. Aha! there he was about 6 tills up. So I walked within a safe distance, lined up the camera and took a quick shot. An elderly woman standing next to me said ‘I hope your not taking photos of me!’ – No I’m taking ……. just then the security guard in Tesco came up to me and said ‘sorry to be a stickler but you can’t take photos in here’. I couldn’t be bothered to try and explain and just said ‘OK’.

Walked over to Nick and told him I just got told off – He was a bit surprised to see me. I showed him the blurred shots and the final one. Secretly I think he enjoyed having a stalker.

nick in tesco

Back to work

I started back to work this week. Three morning, Tuesday, Wednesday and Thursday from 8:45 to 1pm. Although I’m not getting involved in any of the management processes at the moment I have still found it very tiring. All of my body is aching and I have had to go to bed for a rest when I get home.

It’s not as if I have a labour intensive job, I sit at a desk and use a computer, but just sorting through files and going up and down stairs is enough to make me very tired. My concentration at the moment is definitely not what it used to be and I’m finding it difficult to recall all of the things that I used to be able to remember quite easily, such as log on details and web addresses. Maybe I have gone back too soon, but I wanted to try and do as much as I can as soon as I can. I’m not one to sit around and do nothing, I like to keep my brain and as much as possible my body active.

It’s been really good though to actually see people again and not be stuck at home, I have to keep reminding myself that I like the others are there to work and not just for general chat. It’s hard for me to sit there and let everyone else to the organising and arranging things. It’s been nearly a year since I was at work and staff have changed and responsibilities have changed along with the whole ethos of working environment. It’s like starting a new job all over again and getting used to the way things are and trying not to take control but let others do there job.

I’m back in again next week for 4 days and then 4 days leading up to Christmas. HR and I are going to re-evaluate it in the new year to see if I am able to return full time.

Monday, 6 December 2010

Sometimes I worry about myself

I think the chemo over the last year has pickled my brain!

It’s very cold, icy and foggy outside this morning and after having my shower I felt hungry so thought I would get myself some cereal (shreddies today), but as it was cold I quite fancied some hot milk with it.

So I got the jug out of the cupboard, went to the fridge and got the milk poured the milk in the jug and then popped it in the microwave for 3 mins and put the milk back in the fridge.

Bent down and got my a bowl out of the cupboard, picked the cereal up and filled the bowl up because I was quite hungry (another word for being greedy). Poured milk onto them and then went and sat down in the living room.

I had a few spoonfuls and was about to turn the TV on to watch the news when I wondered  …. What’s that noise!! Oh I remember its the microwave I put it on to warm the (slowing down my thoughts as I suddenly realise) milk up for my cereal that I am now eating with cold milk.

I don’t remember putting the cold milk on I’m sure I must have just blanked out for a minute. I had to throw the milk in the jug away.

Oh well maybe tomorrow I will get a warm breakfast.

Saturday, 4 December 2010

Loreal For skin – Faux Par

I’ve just seen this new Loreal advert on TV and had to laugh when the tag line is.

For skin that looks dull, feels dry, tight, rough & less firm.

Now thats what I call an advert for men!




I think someone in their advertising department may have done this as a joke and it finally got on screen. Either that or a good marketing ploy to get people to talk about it. It was on ITV1 at about 6pm.

Friday, 3 December 2010

Poladroid Pictures

No I haven’t spelt it wrong! Who remembers Polaroid Photos, well now you can bring back all the memories of waving you photos about and the anticipation of the images appearing in front of your eyes.

Polaroid is a bit a of software that is free to download both for Mac and Pcs. You drag and drop your square images (you will need to crop them in your favourite image editor) onto the Poladoid and then sit back and watch as it take a few seconds to spit the image out of the camera. Photo will be on your desktop to watch it develop gradually on your screen. You can of course speed it up by shaking your image (ahh the memories).

There is a Flickr group dedicated to Poladroid where you can drop your daily poladroid image. Why not create a story using poladroid pictures.

You can can download Poladroid at  they only thing you don’t get with the software is the smell of photo developing …. don’t you just love the smell of Poladroid in the morning!

Here are a few of mine from this morning.

Poladroid_101203_0002-pola Poladroid_101203_0003-pola Poladroid_101203_0005-pola _MG_9688-pola _MG_9690-pola

Wednesday, 1 December 2010

Derk-Jan makes me laugh!

On my last post to the blog (the one about the things I learned today) a comment has been left by Derk Jan, letting me know how he loves my writing. I’ve just popped over his blog and couldn’t stop laughing. I think he has the same sense of humour as me (poor guy). He has numerous quotes and sayings on his blog. If your feeling down and fancy a laugh go take a peek.

Derk-Jan is a young guy who has Cancer but describes himself as a random idiot (he should fit in ok here then!)

Derk-Jan blog can be found at

Oh and thanks for your comment Derk-Jan it’s nice to know people are actually reading and enjoying my ramblings and it’s great to know guys like you who have a sense of humour and have a good attitude to life.

Things I learned today

1. Ice is slippery

2. Rubber slides on ice

3. Alloy breaks easily  when sliding inside a rubber tyre and hitting a curb stone

4. Wheels made of alloy are expensive at £200 each.

Can you guessed I slid on the ice in my car. I wasn’t going fast at all turning into the my own road off the lane after dropping Charito off at work at 7am in the morning.  Aren’t I considerate and getting up early to take Charito to work rather than letting her ride her bike in! Anyway ….  on the way I just turned into the corner approximately 5 or so miles an hour, if that as I knew it was a bit icy. The car started to turn into the road but then decided it wasn’t going to go all of the way around and slid into the curb with a hefty bang (even though it was slow). The engine cut out (no I didn’t stall it) and the airbag light came on. It must be an automatic thing for the engine to cut off when you have a bump. Fortunately the airbag didn’t deploy. So I turned the engine over and it started ok and the light went out.

Parked up on my drive and went out to a meeting at work later on at 10am. As I drove off I notice that the steering wheel was shaking as I moved onto the lane. I drove it to work but it was shaking quite a bit and I thought ‘I need to get this checked out’ maybe I had knocked the balance or tracking out (not that I know anything about cars, they could tell me the billybingbong needs replacing and I wouldn’t question them).  Anyway after the meeting I thought I would stop off at the Toyota Dealership (where they do all the work on my car) and asked them to have a look at it for me. I told them what had happened and he got one of his guys to take it out for a run as they had cars already on the ramps and already had three people drop in with similar bumps due to the snow and ice. He thought it sound like the maybe one of the balance leads had fallen off (are they next to the billybingbongs I wondered). An the mechanics return I was told that the Wheel was cracked it was unsafe to drive and I would need a new wheel, tyre and possible there more damage but they would have to get it on the ramps for that.

30 minutes later they came back and said there was no damage underneath (phew – I could see the pounds signs mount up there!) and the other good news is that the tyre was fine as well. They had put a temporary wheel on for me and would I like them to order a new one in for me. So hence the two hundred pounds for a new alloy. I’d hate to see the damage done in a proper bump if that was only at low speeds. That £200 pounds is the same price I paid for the car before this one. OK it only lasted me a year, but now I have a good car it cost more for one wheel than a whole car, surely there is something wrong there!!!


The meeting at work was about when I am returning – I’m going back to work on Monday part time, finishing at 1pm each day and only doing three days in the first week and then 4 days for the next couple leading up to Christmas. This will see how I go and it will be reviewed starting in January.

Tuesday, 30 November 2010

The Birds

The Birds, originally uploaded by Sean Tiernan.

I can't sleep at the moment, it now 4:43 and I've been up since 2am. Just added a new picture to flickr of some pigeons that I took last week

Sunday, 28 November 2010

Needles Eye

through the eye of a needle

“Again I say to YOU, it is easier for a camel to get through the needle’s eye than for a rich man to get into the kingdom of God” – Matthew 19:24

I’m not going anyway, so when am I going to win the lottery!

P.S. If there are any rich people reading this and want to go, I’m quite happy to help them if they want to give me all of their money.

The problem with Myeloma

is that when you follow peoples blogs you know eventually that they will come to an end.

One of the blogs that I read now and again is from Susie Hemingway her husband Hamada has Multiple Myeloma and I have found it very helpful to see how Susie and her husband Hamada are coping. Hamada myeloma was much further along than mine, so I found it useful to know what is coming up and how other have dealt with it.

Today when I logged onto the blog at I was upset to learn that Hamada has now passed away.

May you rest in peace.

Friday, 26 November 2010




This morning when Charito was getting up for work I asked her if she wanted me to give her a lift in, rather than her riding her bike to work as it was very cold and icy out. She said no at a first, but after me asking a few times ‘are you sure’ she gave in and let me take her. It’s about 5.5 miles in the car, i’m not sure on the cycle lane which is just be our house and leads all the way to Charitos work.

Anyway I went out first and waited in the car, started the engine and waited for the ice to melt. It hadn’t quite melted when Charito came out so she scraped the side windows and finished off the windscreen.

Dropped her off at about 7:10am and set off home. When I arrived I went to get the house keys out of the cup holder and they weren’t there. Charito still had them!  We normally use my keys to lock the door and when Charito gets in the car in the morning she either gives them to me in my hand or puts them in the cup holder. As she went straight to the boot to get the scraper when she came out, she put the keys in her pocket, where they stayed!

So … I called her to let her know, some how it was my fault for not getting the keys off her!

We now have a new rule I take my own keys and she has to go to the trouble of finding her keys at the bottom of her back. Which should be too hard as she has about three keys on her key ring and around 30 key rings.

It wont happen again …. mind you I said that last time!!!!

Wednesday, 24 November 2010

Portrait examples

OK, I now know that the family has viewed the images so below are some examples from the shoot. All images are with the families permission.

I’ve included examples of the various different styles Using highkey (white background) and lowkey (you’ve guessed it using black background) Some have saturated colours and I've used high tones and contrast, which I think really makes the images stand out.

Hope you like them.

Lilly Lilly Lilly

Sophie Sophie Ruth and Sophie Sophie

Brian and Sophie  Ruth and Brian

 Lilly Sohpie


If you like them and would like some of your own, just fill in my online google form and I will be in touch.

JustGiving – Thank you

Many thanks to those that are donating to my myeloma just giving campaign. It is very much appreciated.

It’s good to see that people who I don’t know personally are donating and I just want to let you know that it is personally very much appreciated.

Thanks again

New Date

I feel as though I have neglected my blogging over the last few weeks, so thought it about time to write something.

I have a new date for my appointment at the hospital again. It was supposed to be mid January, but I have had a letter asking me to go on the 29 December. I think my Dr is on holiday in January; at least I’m hoping it’s that and they don’t want me earlier for any other reasons, such as giving me bad news! I’m sure if it was bad news though, they would have me in earlier still (wouldn’t they!!!)

I’ve been doing more with my photography and had my first family shoot on Monday. It went really well and I will be putting up some pics for everyone to see. I could put some up now, but I haven’t shown the family yet and I don’t want to spoil the surprise (good one I hope) for them.

For those that have said that they would like me to take some photos of them, I have created an online form to help me out. Just fill it in and I will get back to you.

I learned a lot from my first shoot, the first being I’m nowhere near as fit as I used to be, I’m still aching now after a few days. I’m not sure if it is because I haven’t done anything strenuous for a while (not that it was too strenuous for a person in good health) or its the myeloma/treatment still. Hopefully it will be get better with each one I do.

I did really enjoy it though and the results are looking good, even if I do say so myself. Ideally I would love to do this full time as it is so rewarding. After these few free ones that I am doing, I will start to charge for them and see how it goes. I’d much rather be doing photography for the rest of my life (no matter how short or long) than in a stressful job that doesn’t have the same rewards (providing something that is appreciated). So maybe it is time for a complete career change.  At first it will be only word of mouth, so if I do take some photos of you, please let others know how pleased you were with them and ask them to give me a call or let me know and I will contact them (or better still, get them to fill in the form).

Saturday, 20 November 2010

My favourite drink

Single hand coffee one, originally uploaded by Sean Tiernan.

This inspiration for this photo was taken from my frequent visits to starbucks. One of the pictures on the wall in Starbucks is two hands holding coffee beans.

In this case I was taking a photo of my own hand so could only use one as I was taking the picture with the other.

I'm going to take some more shots like this and Charito has volunteered to hold the coffee for me..... that reminds me I must tell her!

Some how I think people are going to argue with me about it being my favourite drink though.

Sunday, 14 November 2010

Chemo Model Mandy

Let me introduce to you Mandy, she is a new model and ideal for practicing lighting techniques!


The postman knocked on my door Friday morning asking me to sign for a package. It came delivered in a grey plastic bag. He had a bit of a worried look on his face when he gave it to me and said it feels like a head! I had to explain it was a plastic head to alleviate his worries.

She looks remarkably like some of the people I have met during my visits to the hospital after they have had their chemo. I’ve called her Mandy (to protect the look-a-likes) as I didn’t meet anyone called Mandy. I know people are going to say … is it me! and the answer is … if you think it is yes.

The reason I bought this is so that I can practice taking my portraits photography without having to have someone sit for me all of the time. It doesn’t replace the practicing with a real human model, but it is the next best thing in there absence.

I didn’t tell my wife Charito that I was buying this, so when it arrived and before she came home from work I thought I would play a bit of a joke (I should really think these things through thought before I do them). I got some cushions and clothes and went upstairs…. yes you’ve guessed it, I put her in my bed with the head on the pillow and the cushions etc underneath to make it look liker her body. When Charito came home I sheepishly tried to persuade her to stay in the kitchen with me. She wanted to go upstairs to have her shower but I asked her to stay for a while…. I slowly built up the suspicion as I was hiding something upstairs, so sure enough after me begging her not to go upstairs … she went upstairs. She looked in the bathroom, then the spare room, all the time asking what are you hiding and me denying anything. Then she went into the bedroom looked around and gasped and shuddered as she saw the woman in our bed! Then after a second or two realised it obviously wasn’t real. I then got called lots of names in Spanish that I can’t repeat on here except that I was an ‘imbecile’.

We both laughed about it at least I think she was laughing, it could have been more of a sneer.

As I was writing this, it reminded me of another instance when daughter was born and I pretended to drop her on the kitchen floor using a doll dressed up in her baby clothes!…. Trust me don’t ever try that one, it really isn’t worth the emotional upset! I think maybe I should go to counselling for my warped sense of humour.

Tuesday, 9 November 2010

Portraits for Christmas

Peruvian Woman

I could do with some willing volunteers to model for me. In return I will give them some prints or a CD/DVD with images on. I want to practice taking some portraits, so if your a budding model, just want some pics  done for Christmas or even would just like to help me out then get in touch.

I have my own lighting equipment and background that I can bring over to your house or I can set up a room at home for taking the shots, whichever is the most convenient.

Oh… obviously you shouldn’t live too far away from me (Chester/North Wales/North West)… I’m good but not that good to travel to the other side of the country (not unless you want to pay my travel expenses that is)



I’m been taking some more shots indoors, as the weather hasn’t been too good. Here are a couple of results. These have been tweaked in photoshops (just a little!)

Poppy Heart

 Soldier in smoking poppy

Friday, 5 November 2010

One year on

It is exactly one year since I found out I have Myeloma – time flies.

Most of the year I’ve been having Chemo in some form or other, 7 months in tablet form and a month in hospital with high dose for my stem cell transplant.

How am I doing? Well my last blood test that I had at Liverpool, the results came back ok. Although I was on the day ward as it was supposed to be quicker, turned out to be a much longer wait. Never mind I don’t have to go back there again so it wont happen again. My next appointment is in January at Chester hospital. I wont know until then if the transplant has done what it has supposed to i.e. my paraprotein levels should now be really low and stay low (the paraprotein is the bad stuff in the blood that I don’t want any of). So a nervous wait until then.

I’m waiting to hear back from the HR department at work who are arranging a meeting with my boss or bosses! I’m very  apprehensive about going back and get stressed even thinking about it. Is this the right time to go back ….not sure but I have to try, not the least because I need to start earning some money again; either that or win the lottery!


Myeloma Buddies

These are the myeloma buddies that I received from Paula with a congratulations card. I won these by correctly identifying her auntie Ann in a photograph. The card reads…


Who would have thought congratulations had so many letters, not me! It’s a good job I didn’t do a smaller card. Anyhoo, even though Saints lost you get two buddies. Hope you like them Paula xmyeloma-buddies-2

Although you can’t tell from the picture, the letters are made up of plastic buttons with letters on them. The little note around the coloured buddy says: Since you recognise me from the knitting needles last Friday, you  get another Buddy too!  as Paula says the other Friday when I bumped into her in Phlebotomy waiting to have her blood taken she was knitting something multicoloured, which happened to be my buddy. I nearly didn’t notice Paula as she now has hair! The Buddies have pride of place on the shelf next to me and may be appearing in future photo shoots .

Wednesday, 20 October 2010



I went into to work on Monday to see HR and to talk about a plan for returning to work. At the moment I’m planning to go back in December part time and then January full time, but this depends on how my bloods are doing. I’m back in Liverpool on the 28th and I should know more by then.

It was strange going back in, lots of new face and lots of people have left (no change there). Getting my head into work mode is going to be quite difficult. I’m not sure where I will fit in anymore as things have changed, but I’m sure there will be plenty of problems for me to sort out once I have settled back in.



Saturday, 16 October 2010

Mistake and MRI results

The Arival of Autumn

I had an appointment on Wednesday at Chester hospital. It’s the first time I have been back to Chester since my transplant. I arrived at about 9am and had my bloods taken. It was really nice to be back in Chester, it is a much nicer waiting area than Liverpool, nice and bright, TV, comfy seat and lovely staff.  After a short wait I went in to see Dr Lee, he asked how I was doing and after I explained that I was going to Liverpool on Friday to find out the results about my MRI because of my shoulder he asked if they mentioned about my haemoglobin being really low! He said it was seriously low and is a concern, which had me really worried!! He was looking through his notes and asked me when I had my transplant, I told him the 26th, at which he still looked blank…… ‘of August’ I said. He was surprised and flicked through his notes again and then apologised as he realised that he had called me back into Chester too early, he thought I had my transplant in June, as they see people three months after their transplant.

Knowing that it had only been just over a month since my transplant he said my haemoglobin was actually very good for only a month and being anaemic is normally at this stage. Phew! he had me worried at first.

He gave me a printout of my blood results to take to Liverpool with me on Friday, to save me having to have more blood taken and also so I didn’t have to wait the usual long wait in Liverpool for my blood to be taken.

Friday at Liverpool I was walking past the Phlebotomy room and glanced through the window to see if there was anyone I  knew waiting. I had to have a double take as at first I didn’t recognise anyone, but noticing someone knitting I realised it was Paula – she has hair, I nearly didn’t recognise her. I went in and had a quick chat with her and she is doing ok and it was good to see her again.

They were short staffed at the clinic, but I didn’t have to wait too long as I already had my blood results. I got called in by Edwina who is the BMT coordinator,  who was covering for everyone. She is a lovely person and always goes through things thoroughly. The MRI results showed that I have a ‘bulge’ in my spine at t1/t2 which is at the top of my neck. Edwina asked if it was ok to refer me back to Chester to deal with it as it would initially require physiotherapy and it would save me having to travel to Liverpool just for this. My neutrophiles are still low at 1.9 but this could be due to the septrin again which I have started again this week. I have to go in again on the 28th to the day ward on 10z but as for attending the G-clinic, I have now been discharged and referred back to Chester – Hooray!  Dr Lee had already made an appointment for January to see me, which is when they will be able to see how successful the transplant has been in reducing my para-protein. This is the appointment that Dr Lee thought I was attending, so hopefully by then my bloods should be ok and I wont get any shocks.

Tuesday, 12 October 2010

I’m a winner

A few weeks ago Paula (Feresaknits blog) ran a competition to win a myeloma buddy. Yesterday the results were published and I am the winner!

I will take some pictures of my Myeloma Buddy once I have him/her and post them on here.

Monday, 11 October 2010

Pictures from my phone

I’ve recently installed an application for my Android phone called vignette that allows me to take some stylish images using the built in camera. Below are some of the images I’ve snapped. I’m quite pleased with the way that they have come out.

Valentine Swan

skiffle in chester eye have a thought candle light thinking about my wife deep in thought one