Yesterday was my three weekly visit to the hospital to get my next cycle of medication. All straight forward, usual bloods taken and then go in to see the doctor. My blood results are still looking really good. My para protein level have reduced from 56 to 8 which is great and my blood count is up to 12.
I got my prescription and dropped it off at pharmacy and went for my usual cup of tea (yes tea! the coffee is horrible) at the hospital cafe while waiting. It normally take hours, but I though I would just go back and ask, just in case. Sure enough it was nearly ready, so I waited for them to finish it off. They do the usual instruction before handing over the large brown bad full of goodies. So back to the car and put them in the boot as usual. When I got home and started unpacking them to put them away in the cupboard I realised they hadn’t given me the Dexamethasone. I double checked they hadn’t fallen out in the boot (the boot is empty apart from a plastic basket to put things in). The boot was completely empty, so it was a trip back to the hospital again.
I told the person at the desk what had happened and handed over my copy of the prescription. She went away and another person came, the same person who handed me all of my medication in the brown bag. She said ‘Are you sure it isn’t in there, I checked them myself, it’s in a white box’. Err Derrrr all of the medication I receive are in white boxes!! Not that I said that to her of course. I wanted to say – Unless I was mugged by invisible Ninja’s, you didn’t put them in, but I refrained and simply stated again that they weren’t in their. So she gave me another box of Dex to take home – Guess what, they were in a white box and this time no Ninja attacks.
I’ve taken my Dexamethasone today along with my Cyclophosphamide (Chemo) and the usual bunch of tablets and injections.
Hopefully I only have three more weeks of this, but I will know more on the 12 March when I go to Liverpool for my first meeting with them.