Today is a tiring day. Not done much, but yesterday I started to feel as though my chest was hurting like asthma and today it has carried on. I’m tired when walking and my fingers and feet are tingling.
I think it is a combination of a number of things. The Pentamidine the increase in Thalidomide and my general fatigue. As mentioned yesterday, I was told that the Pentamidine could cause a side effects like asthma and I’m pretty sure that is what it is; however as I am the only one in the family who doesn’t have or ever had asthma it is hard to tell, but from what people have told me I imagine this is what it is like (although I’m sure it is much worse for real sufferers).
The tingling is related to the Thalidomide. I have had it before and it normally goes away after a day or two when they adjust the amount I take. I started off on 100mg a night I’m now on 200mg. It makes my feet, hands (including fingers), lips and tongue feel as though it has pins and needles.
The general tiredness/fatigue is a bit of a pain as well. I was hoping that now my blood count is going back up I wouldn’t be as tired on a daily basis. It is a struggle to get from my desk to the canteen to get a drink, but I know if I don’t do some exercise it will only get worse. A little is better than none at all.
I could quite easily stay at home and rest and relax which I can do if I want. I have already arranged to only go into work when I feel like it. I think I’m doing quite well going in as much as I have done. I can’t really concentrate much and I know I’m not as pro-active as I was when I was well. For me though I would rather be of a little use in the office than no use at home just vegetating in front of the TV.
Personally I need to push myself that little bit or I will just give up and think what’s the point – little day to day challenges are what keeps me going.
… talking of challenges … I’m off for a long walk to the canteen to get a coffee.