I’ve been out of hospital since Wednesday, sorry just not got around to writing on the blog.
The shingles have dried up and scabs have started to fall off, not pretty I know. The so called Chicken Pox that was never confirmed have cleared up and you wouldn’t really know I had them. After the swab results came back, one confirmed it was shingles (which we knew) and the other was inconclusive. I kept getting told it was impossible to have shingles and chicken pox at the same time, but it did look as though that was the case. Trust me to be unusual.
I moved rooms for the last few days I was in hospital, this one had a shower of it’s own, which was much better, although it was over the other side of the ward and they treated me a bit like a leper because of the shingles, even though I kept telling them I was no longer at risk as the doctors had confirmed that they were no longer infectious and they were only keeping me in the extra few days to make sure I was ok on the tablets as they had taken me off of the drip.
I has some good news while I was in hospital for a change and a bit of a shock as well. I was told that my PAD treatment was working really well and my bloods had normalised (I need to clarify what he meant by that) and they are going to refer me back to Liverpool for another transplant, this time though with donor stem cells.
Although this prolongs my treatment until I can have some kind of normality I think it will be worth it to try and gain some extra years. I was asked about my siblings for donor stem cells and will arrange for them to be tested for a match. I’m not sure what the process is for matching stem cells and if that involves having the bone marrow biopsy as well as usual blood test. I will have to ask at my next appointment, which isn’t until Wednesday. We have decided to hold off the next PAD cycle until after the bank holidays. It will give my body a bit of time to recover and we will then have the necessary number of working days in the week to start and stop the doxorubicin.
for those that are wondering how my Grandson is, he is now walking ok although they still don’t know whey he had the seizure in the first place, they have put the walking problem down to the Chicken Pox he had.