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Saturday, 28 January 2012

Revlimid Cycle 2

Although this is my first cycle of Revlimid after the transplant, because I was on it for about three weeks prior to transplant, they are calling this cycle 2.

Yesterday was day 15 of the 21 day cycle. Up  until yesterday, I have had low platelet counts and required blood. From the blood test I had done yesterday though, it looks as though it is holding. Well least my bloods are anyway. I came out of the appointment feeling a bit more positive.

My HB was 9.9 and platelets 29, which is good for me and I don’t need anything over the weekend. I really thought I was going to have to go back in again today (Saturday) to have a top up of either blood or platelets. More good news is that my Creatinine level is within the normal range, it hasn’t been there for a very long time, if at all!

So what is it that is making a difference now, well I’m not 100% convinced it is just the Dexamethasone and Lenalidomide that is making a difference. I think I mentioned I was looking at the healthy options of treating Myeloma and in the past I’ve told you about the Sessamin, well I’ve started taking that on a regular basis as well

I will be posting more about my findings and what I’m taking, but it looks quite promising what I have found out. As a quick overview this is what I am taking so far, but this might change as I do more and more research into the different vitamins, herbs and minerals.

- Sessamin three times a day

- Vitamin D one daily

- Omega 3

- Milk Thistle

- Turmeric/Curcumin

- Green Tea

These are the things I’m taking regularly now, I have lots of other things as well that I’m dabbling with and I will let you know if they make  difference. I’ve bought various different products so that I can try out  the Raw whole grain cerial. – I’ve got a document that you can have  look at with all of the various wheat's etc.

The first time I made this though it came out far too thick, so I need to change a few things to get it right. Also need to make it a bit more exciting to eat as it was like chewing on plain flower. I’ve got some other products to add to it so once I have got something that works and tastes ok,  I will give you an update.

Even more good news yesterday, do you remember I enquired about the CD44 Protein. Dr Robert Orlowski’s lab had shown …

… in earlier research that a protein CD44 plays a role in interfering with the drug, and its presence usually indicates a poor outlook for the patient.

Well my results came back and I don’t have it, so at least one less thing I need to worry about.

Talking about Dr Robert Orlowski, I was speaking to Dr Salim about the DCA and the myeloma patient that Dr Orlowski has who is trying out the DCA, and he was enquiring if I had heard anything yet. I’d already sent a message to Robert asking if he had an update as he asked to me get in touch in a few weeks to find out how he was doing. I realise he is a very busy person and probably wouldn’t get around to replying to me for a while, but strangely enough, later on that day he did.

At 1st visit after DCA therapy he had a decrease in the M-protein. It will be interesting to see what happens at next visit.

I will continue to monitor what is happening with the patient and give the DCA a go if it seems to be effective in the treatment of Myeloma.

So I continue to have quite a few options open to me at the moment, so as always staying positive and looking on the bright side…. Talking of which…

Always look on the bright side of life. … I’m still waiting for all of your video clips to arrive so that I can create my little montage. I have received a few videos through, but not as many as I as hoping, please help me out or it will be a very small montage!



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  2. I was instructed that green tea stops Revlimid from working

  3. Thanks the brand drug maker create the drug for the patients. But most of the people cannot afford the brand drugs. Just as the article mentioned Hope more and more countries can allow the generic one. Give more family new hope