My brother Nigel had his appointment over at the Royal Liverpool on Friday. We thought it was going to be a a general chat to go over the procedure for extracting his stem cells. The person he was meeting with has to be someone not associated with the Royal Liverpool Hospital as they need to be unbiased towards me. I went with him, just to keep him company etc. I initially went into the room with him, but I was told I couldn’t be there had to leave. I think so they could talk openly and I didn’t try to influence any decisions that he had to make. Not that I thought for one minute he was going to change his mind and I know Nigel wouldn’t be bothered if I stayed, but I suppose they have to follow procedure.
I was kept busy while waiting though as we met up with Paula and Bernard, so I went for a coffee and cake with them and had a good laugh about things, as we do.
The transplant coordinator saw me at the coffee shop and asked if I wouldn’t mind signing the consent forms while I was there, so I said I would pop upstairs afterwards to go through it and pick up the schedule that I was going to collect.
After Nigel came out of the meeting, he had to have some tests he wasn’t expecting, ECG and X-Rays etc. Everything was fine though and it was just a matter of the usual waiting around for people to be seen.
I also saw Heather from my local Chester hospital who had been for a meeting about her possible transplant. I let her know that I was going to be (hopefully) stream my transplant live on the internet. I’m not sure if she will watch or it will put her off.
By the time we got the tenth floor and Nigel had picked up his prescription for the growth factor, the needles he needs to inject himself with to get the stem cells into his blood stream, it was gone lunch time. We still had to have another wait before seeing the Dr to run through all of the schedule and risks that are involved in my transplant. The schedule is below (clicking it should enlarge it) and I have put a link to the PDF of all of the risks and side effects. There are quite a few of them and I’m not going to get them all
So what we thought was going to be about an hours appointment turned out to be about 4 hours. We should have known better.